The Consortium for Citizens with Disabilities (CCD)

CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The organizations are listed below:

Advancing Independence: Modernizing Medicare and Medicaid (AIMMM)
AAN – American Academy of Neurology
AAP – American Academy of Pediatrics
AAPD – American Association of People with Disabilities
AAPM&R – American Academy of Physical Medicine and Rehabilitation
ACCSES – American Congress of Community Supports and Employment Services
ACB – American Council of the Blind
ACA – American Counseling Association
ADTA – American Dance Therapy Association
American Diabetes Association
AFB – American Foundation for the Blind
AMRPA – American Medical Rehabilitation Providers Association
AMTA – American Music Therapy Association
ANCOR – American Network of Community Options and Resources
AOTA – American Occupational Therapy Association
APTA – American Physical Therapy Association
ASHA – American Speech-Language-Hearing Association
ATRA – American Therapeutic Recreation Association
AER – Association for Education and Rehabilitation of the Blind and Visually Impaired
APSE – Association for Persons in Supported Employment
AMCHP – Association of Maternal and Child Health Programs
AUCD – Association of University Centers on Disabilities
COPAA – Council of Parent Attorney and Advocates
DREDF – Disability Rights Education and Defense Fund, Inc.
DEC/CEC – Division for Early Childhood of the CEC
Easter Seals
Epilepsy Foundation
Goodwill Industries International, Inc.
IRI – Inclusion Research Institute
I-NABIR – Inter/National Association of Business, Industry and Rehabilitation
IAPSRS – International Association of Psychosocial Rehabilitation Services
IDA – International Dyslexia Association
LDA – Learning Disabilities Association of America
NAEH – National Alliance to End Homelessness
NAAOP – National Association for the Advancement of Orthotics and Prosthetics
NAON – National Association of Orthopaedic Nurses
NAPSEC – National Association of Private Special Education Centers
NARRTC – National Association of Rehabilitation Research and Training Centers
NASN – National Association of School Nurses
NASP – National Association of School Psychologists
NASW – National Association of Social Workers, Inc.
NASDSE– National Association of State Directors of Special Education
NCLD – National Center for Learning Disabilities
NCPSSM – National Committee to Preserve Social Security and Medicare
NCPERID – National Consortium of Physical Education and Recreation for individuals with Disabilities
NCCBH – National Council for Community Behavioral Healthcare
NIB – National Industries for the Blind
National Information Center for Children and Youth with Disabilities (NICHCY)
NISH – (formerly the National Industries for the Severely Handicapped
NMSS – National Multiple Sclerosis Society
NOSSCR – National Organization of Social Security Claimants’ Representatives
NOD – National Organization on Disability
NRA – National Rehabilitation Association
NRC – National Respite Coalition
NSCLC – National Senior Citizens Law Center
NTRS – National Therapeutic Recreation Society
PVA – Paralyzed Veterans of America
SSWAA – School Social Work Association of America
SBAA – Spina Bifida Association of America
TASH – Equity, Opportunity and Inclusion for People with Disabilities since 1975
TED/CEC – Teacher Education Division of the Council for Exceptional Children
T.II.C.A.N.N. – Title II Community AIDS National Network
TSA – Tourette Syndrome Association, Inc.
UCPA – United Cerebral Palsy Association

Intellectual and Developmental Disabilities

AAIDD – American Association on Intellectual and Developmental Disabilities
Arc-US – The Arc of the United States
ASA – Autism Society of America
CEC – The Council for Exceptional Children
Cerebral Palsy – Ask the Doctor, a resource for parents and families.
The Council on Quality and Leadership in Supports for People with Disabilities (The Council)
CDDC – Consortium of Developmental Disabilities Councils
Exceptional Parent (EP) magazine – provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Family Village – a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
Fundación John Langdon Down
Joseph P. Kennedy, Jr. Foundation
NACDD – National Association of Councils on Developmental Disabilities
NAPAS – National Association of Protection and Advocacy Services
NASDDDS – National Association for State Directors of Developmental Disabilities Services.
NDSS – National Down Syndrome Society

Agencies of the Federal Government

The Access Board A federal agency committed to accessible design.
Administration on Developmental Disabilities (ADD) is the U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, known as the DD Act. ADD, its staff and programs, are part of the Administration for Children and Families, of the U.S. Department of Health and Human Services.
Agency for Health Care Research and Quality (AHRQ) Healthcare research
Assistant Secretary for Planning and Evaluation (ASPE), Division of Disability, Aging and Long-Term Care Policy
Bureau of Economic Analysis (BEA), U.S. Department of Commerce
Centers for Disease Control and Prevention (CDC)
Centers for Medicare and Medicaid Services. Previously called the Health Care Financing Administration (HCFA).
Congressional Research Service provides access to a list of its publications.
FedStats, Links to more than 100 US federal agencies providing data and statistics.
Recent reports from the General Accounting Office (GAO)
Library of Congress
Social Security Administration (SSA) programs, Disability, Old Age Survivors Insurance (OASI), Supplemental Security Income (SSI).
Thomas, comprehensive locator information about Congress’ legislation.
The U.S. Department of Justice ADA home page forms for filing ADA complaints, ADA regulations and technical assistance materials, ADA enforcement status reports, ADA settlements and consent decrees.
United States Office of Management and Budget (OMB) latest Federal budget.

State Information

A list of all states’ I/DD agencies
Association of University Centers on Disabilities (AUCD) formerly the American Association of University Affiliated Programs (AAUAP).
National Association of Councils on Developmental Disabilities (NACDD)
National Association of Protection and Advocacy Associations (NAPAS)
National Association of State Budget Officers
National Association of State Directors of Developmental Disabilities Services (NASDDDS) is the national organization for Directors of State Intellectual and Developmental Disabilities (I/DD) agencies; conducts policy research.
National Association of State Medicaid Directors
National Association of State Mental Health Program Directors (NASMHPD) National Research Institute. Bibliographic information; data on mental health policy, financing.
National Conference of State Legislatures (NCSL), Information on state budget and policy issues; legislation.
National Governors Association (NGA), Executive priorities in the states; budget issues.

Private Research Institutes

Human Services Research Institute (HSRI)
Center on Budget and Policy Priorities
Economic Policy Institute (EPI) on-line publications related to health policy and managed care including The State of Working America, 1998-99.
Mathematica Policy Research organization.

Disability Data & Statistics

National Core Indicators (NCI)
Access to Disability Data @ InfoUse – data resources including chartbooks, statistical charts, tables and surveys.
Center on Human Policy, Syracuse University
Disability Statistics Center – disseminates statistical information on disability and the status of people with disabilities in American Society.
Institute on Community Integration, University of Minnesota
National Center for the Dissemination of Disability Research – conducts research, dissemination and utilization activities, demonstration projects, and technical assistance.
U.S. Disability Statistics, Cornell University